Little Lessons - Our blog

Chicken Pox and Kindergarten Graduation

     Unbelievably, with what has to be the worst timing ever, Vi has come down with Chicken Pox.  I am completely blown away by this because she was vaccinated and I honestly didnt think that kids got them any more.  Welp.  Turns out, they do.  Just to a lesser degree than WE did and apparently you dont rub your kids on other kids to infect them anymore ”like in the olden days when my mom was a kid” as Vi has been telling people.  She is handling it like a caged lion.  She‘s not itchy or uncomfortable in the least - and for that I am obviously happy, but she is contagious and cant go anywhere....and Kindergarten graduation is TOMORROW.  And dance recitals, last days of school and all the year end fun that goes along with it.  She doesn’t seem too bummed out about the actual graduation ceremony but she is upset about missing the last couple days of school.  I’m probably more upset about it all than she is. 

     The Husband and I just got back from an awesome trip (kid-less for the first REAL time) and I have felt behind and unable to get caught up this whole week.  As all parents know, this time of the year is absolute madness.  And now on top of it, we are diseased.  Insert tear gushing emoji.  Then this morning as I was trying to figure out where to start my mom sent me a text to check in., and gave me two little words that made me cry and also have helped put me at a place closer to calm.  God Knows.  

     God Knows.  He does.  He knows that I am not a fan of this timing.  That I am freaking out about all the stuff that needs to get done, events that need to happen.  All of it.  And yet for whatever reason, we have been “blessed” with the Chicken Pox.  What the heck???  But here’s the thing. I choose to trust Him.  I choose to trust that His plans are always good,, that His timing is perfect, that He’s got it all under control and that this is what He wants to happen.  Its not about what I want.  Maybe its about what we NEED.  I honestly have no idea what the lesson is going to be here...big or small.  But I’m trying to relax and let it go and realize that in the grand scheme of things, its not that big of a deal.  That God knows.  And He‘s got this.  

     I‘ve been working on a new song....as usual I have the chorus and now I’m just waiting for the verses to come.  But I’m going to share it anyway because it goes along with this day and this “whatever”.  These Little Lessons.

     https://soundcloud.com/theprettycrazies/give-me-your-strength-chorus

     I’m going to take the kids to the Dr. tomorrow before we would be heading to school...maybe a miracle will happen over night and the pox will be off our house.  Maybe not.  I dont know.  But God Knows.  I hope that you can find those two little words encouraging for you too....for whatever you need them for today.

xoxo

     

“Down Syndrome” isnt a bad word.

Its that time of year again!!  Rock your socks for World Down Syndrome day!!!  By this time you all probably know why its 3/21 but if you forgot, this day was chosen because Down Syndrome occurs when there is 3 copies of the 21st chromosome.  So we are three (and a little bit) years in to our journey with DS now and whats really been on my mind lately is that Down Syndrome is not a bad word.  You dont need to say it in hushed tones or with a sad or confused or embarrassed look on your face.  There is absolulrely nothing wrong with having Down Syndrome and there is nothing wrong with talking about it.  I am insanely proud of both of my daughters.  I am proud of who they are becoming.  I wouldnt change them for anything.  And that includes Lulu‘s extra chromosome.  If she didnt have it she wouldnt be her.  And if you know her, I’m pretty sure you love her.  She‘s amazing.  She’s seriously funny, shes smart, shes very very kind and tender hearted, shes absolutely beautiful and she is fiercely deterimined.  Literally, and I do LITERALLY MEAN LITERALLY, she can do ANYTHING in this world that she chooses to do.  She can go to college, she can have a career, she can live independently, she can get married....she can do whatever she wants to do.  I am well aware that years ago parents couldn’t say that about their people with DS.  BUT those days are gone and I say in all confidence that my crazy little chromosomally enhanced kiddo CAN.  People much stronger and smarter and braver than me have been fighting the good fight for our kiddos for so long that I get to say these things.  That my daughter can just be herself.  There is still work to do though.  There are still parents who get their childs diagnosis and cry.  I was one of them.  I was scared.  I didnt know what I know now.  So now that I DO know that Down Syndrome isnt a bad thing, I want to do what I can in my way to help the cause.  Mostly, we advocate - as I have said before - just by letting Lu be Lu.  We let her change people’s perceptions.  We put her out there in all the regular things.  But this brings me to my main thought these days. I want you to ask me about DS.  I certainly dont know everything....but I do know Lu.  I want you to ask any question, I want you to talk about it and say the words Down Syndrome if you need to as part of the conversation and not dance around it.  Because its not a bad word.  Because there is nothing wrong with having Down Syndrome.  Because there is nothing wrong with Lu.  Shes awesome.  When I say Down Syndrome or talk about it now my face lights up.  I smile.  Sometimes I still cry but its not in the sad way.  It’s because this child with her perfectly placed extra chromosome has changed my life.  Three of my now closest friends are also in ”the club”.  The awareness of others that being a part of this journey has brought me is priceless.  And mostly, its just Lucia herself.  I’m not ashamed of her 47 chromosomes, honestly most of the time we dont even think about it.  Shes just Lu.  And Down Syndrome is part of who she is.  Along with her gorgeous hair and sparkling personality.  SO, for this World Down Syndrome Day I would just encourage you to say the words.  To talk about it...how we are all more a like than different (shameless song and book plug!) to not be embarrassed to ask questions, to learn, to meet people with DS and get to know them.  It’s DEFINITELY not a bad thing.  And you will be a better person for it.  

Xoxo

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The Pretty Crazies

NEWS!!!

GUESS WHAT?!??!

Our most recent "Little Lesson" post was picked up by the super great website THE MIGHTY!!!  YAY!!!!

https://themighty.com/2018/03/down-syndrome-isnt-a-bad-word/